Day 62 at Cancer Treatment Centers of America

 Tuesday, July 29th 2014

 Today at CTCA we arrived around 9:00 a.m. We got out of the car and Meemaw could not even walk two feet, so I ran in and got a wheelchair again. Then , I got her to get in it and we went to Quality of Life on the second floor.  I checked her in and then in about 10 minutes they took her back for another blood draw.  I stepped out of the room for a while, so that the doctor could take blood from Meemaw.  I stepped out because I can't stand it!  I think that it's just really gross, but that is just me!

      

I got her back in the wheelchair and we went to radiology and got checked in. The nurse said that we could go back so I pushed her back to the radiation waiting room. It felt like an hour before the nurse took her back for treatment, but it was only 35 minutes.  I came back out to the lobby to wait while Kayleigh and Uncle Bubba went to the Cancer Fighters Center upstairs.  While Bubba and Kayleigh were up on the second floor he got a good call, it was the Quality of Life nurse, she said that the blood work was fine and Meemaw will not need to come back up today!  So, now all that was left to do was go home! As we were leaving we ran into a new support dog. His name is Dr. Dolittle.  He is a small white dog dressed in a country boy outfit.

Kayleigh and Dr. Dolittle

So I pushed her all the way to the front door and Bubba pulled the car around and I got Meemaw in the car. I had to go and return the wheelchair to the front desk and get in the car myself.  We are getting closer to Meemaw's Graduation Day!

Day 61 at Cancer Treatment Centers of America

Monday, July 28th, 2014

    This morning we arrived at the CTCA at 8:00 a.m..  Meemaw could not walk much so I had to run in and go get a wheelchair for her.  I let her sit down and then we went in for her appointments.  She had radiation at 8:45 a.m., so I pushed her all the way down to radiology and I got her checked in.  The nurse said that we could go on back to the radiation waiting room already.  Today was a fast and I mean really fast day, we sat down in the waiting room and within ten minutes the nurse took her back.  I went to the lobby and sat down with Uncle Bubba, Papa, and my little sister Kayleigh.

We went to the new Cancer Fighters Center and it was really neat.  They aren't completely finished with it.   We stayed for about ten minutes then we went back down stairs to wait on Meemaw.

The pictures hanging in the Cancer Fighters Center

In about 5 more minutes Meemaw came out and it was time for our next appointment on the schedule.

 Next on the schedule was a blood draw.  Then, she had to get an x-ray on her stomach because she had been experiencing stomach pains and nausea this past weekend.  Uncle Bubba, Meemaw and I had to go back into a room to see the Quality of Life doctor.  The doctor came in and told us that everything was fine and normal with her x-ray and blood work except for her potassium again. Her docter gave her some kind of liquid called kayexalate that reduces her potassium and it makes her use the bathroom (if you know what I mean).  Then we got in the car and went home and when we got home she drank it but it did nothing to her!  Weird right?
   

Day 58 at Cancer Treatment Centers of America

Wednesday, July 23rd 2014

Mom woke up this morning extremely nauseous and sick.  She was scheduled for radiation at 9:25 a.m., but was unable to complete today's treatment due to her constant vomiting.  We now have ten more radiation treatments to go and Dr. Norleena Gullett really wants to do what ever it takes to get mom through these last treatments.  Zofran was administered through her port to stop the nausea.

During the weekly Radiation Oncology follow-up with Dr. Gullett and Kathy McLaine, Dr. Gullett asked dad to go to the car and bring in mom's bag with all of her medications and supplements.  Magic Mouthwash needs to be used 3 times a day again.  Aquaphore is to be used on her neck after radiation treatments and before going to bed.  Silvadene is not needed while there are no open wounds or a  threat of infection.  Dr. Gullett discontinued 10 supplements and medications.

Although, Gullett believes that all of the supplements that she is currently taking are great for her overall health, since mom is experiencing nausea, it's best to eliminate some things.

During the Nurse Assessment in the clinic with mom's nurse Dee, mom was weighed as usual and mom has lost another pound, now she is at 106.  After mom's appointment with Georgianna to go over any changes, it was time to met with Letitia Price, Nurse Practitioner, to review mom's blood work.  Everything was good except her potassium is elevated.  Her blood levels were off a bit probably from vomiting so much this morning.  Letitia ordered an hour of fluids to see how mom's blood work looks tomorrow.  Unfortunately, infusion couldn't fit her in until 5:00 p.m. and mom said not today.   The infusion has been rescheduled for tomorrow during her appointment for Chemotherapy at 10:00 a.m..

Day 57 at Cancer Treatment Centers of America

Tuesday, July 22nd 2014

Yesterday, mom said she didn't feel well and decided not to go for her appointments at CTCA.  The schedule for yesterday was a full load including her next Chemotherapy Treatment and now the entire schedule has to be reworked.

Dad and I spoke with Dr. Gullett, mom's Radiologist, in the lobby about mom's progress.  Dr. Gullett and Kathy McLaine are two of the nicest people I have ever met.  She and Kathy corrected the insurance issues regarding mom's Fentanyl patches so she can start back using the long lasting Duragesic. She is to be on 37.5 micrograms of Fentanly now.  Her attitude is a lot better and she is less irritable when she has the patches.  

You can really tell she desperately wants to eat because she continues to try every time we go out or eat at the cafeteria.  Her tongue is still raw from the treatments and nothing is really providing relief at this point in the process.  We have our weekly meeting with Dr. Gullett and her team tomorrow as well as her nurse assessment and blood draw so hopefully everything continues to go well.  Graduation from Radiation is just a couple of weeks away!

Day 56 at Cancer Treatment Centers of America

Friday, July 18th 2014

ZEN LANDSCAPE III

Today was our 56th day at CTCA for another radiation treatment and mom is still handling the treatments well with the new mask.  We have nine more treatments to go before graduation day!

Kelli Dani Fitzpatrick and Studio El

There really isn't much else to report from today.  We will be back Monday for a full day's schedule including Chemotherapy and the fifth of nine more radiation treatments.

Day 55 at Cancer Treatment Centers of America

Thursday, July 17th 2014

Today mom was only schedule for a radiation treatment at Cancer Treatment Centers of America.  We are counting down the treatments.  Two treatments down and ten more to go!

We can't wait until mom has been added to the tree!

On our way home we stopped to have lunch at Speedi-Pig Barbecue.  It was mom's choice but unfortunately due to her tongue being so effected by Chemotherapy, mom was unable to eat.  Gabie and the folks had been there before but Kayleigh and I hadn't.  We had piglets and stew and also sampled some amazing smoked chicken wings.  The Brunswick Stew almost reminded me of the stew at the old Harold's Barbecue on McDonough Street in Atlanta.

Day 54 at Cancer Treatment Centers of America

Wednesday, July 16th 2014

After four days off, we were back at Cancer Treatment Centers of America this morning early for a full day's schedule.  Mom had blood drawn at 8:00 a.m..  During the nurse assessment, mom weighed in at 107 pounds, she has lost 7 pounds since the last weigh in.  Now that she is properly nourished her body is using her nutrients to fight the cancer.  We were told to expect this.  Her blood pressure and temperature were normal.  

The Chapel

Mom's tongue was sore and raw which is a side effect of the Chemotherapy.  At 9:30 a.m., we met with Leticia, Dr. McKnight's nurse.  Mom's Hemoglobin is up to 9.4 and 6.8 for the white blood cell counts.  Dr. McKnight's team are planning on returning to Chemo treatments starting next week.  Mom will only have the Taxol and not the Carbo for the next two weeks and after that Dr. McKnight will evaluate her progress and decide on a plan going forward.  They don't want her blood levels to drop again.  Edra Spevack, mom's Naturopathy checked to make sure she is still doing well on the supplements that mom is on.  She must start using L-Glutamine again which will help her tongue and mouth going forward.

Mom went back to radiation at 10:45 a.m., to use the new mask and start radiation treatments again.  When she came out of treatment she was very happy with the new mask, no pain or aggravation.  Her last appointment today was with Ms. Jennifer Cargile, Speech-Language Pathologist.  Ms. Cargile said her throat muscles and her ability to swallow are both working really well.

We will back tomorrow for radiation.  Only eleven more radiation treatments!

Day 53, Coming Home from Cancer Treatment Centers of America

Saturday, July 12th 2014

Dad, Gabie and I drove to Cancer Treatment Centers of America to pick up mom this morning!  We arrived and mom was ready to go.  She was dressed, packed and waiting on us to check out. Gabie and I carried her belongings to the car so we could pick her and dad up at the front door, but mom decided to walk to the car instead.

When we got her home, Toni, Steven and Kayleigh were waiting for us.  Mom was so excited to see everyone and be home!  Duke, the family dog, was happy to see her too!  We had to put him on the leash to keep him from tackling mom because he has missed her so much!  When mom had the nose bleed and was admitted into CTCA, Duke went through the trash can and pulled all of her bloody tissues out and laid them in a pile in her bedroom.  Duke has never pulled anything out of the trash before.  If you were to sit in her chair at the kitchen table, Duke would nudge you with his nose and if you didn't move out of her seat he would try to bite at you!

Debbie and Mom

Mom had some surprise visitors after she was home.  Lifelong friends, Debbie and Gerald, came to see her this afternoon and brought her some new pajamas for when she is just lounging around.  We all reminisced and enjoyed hanging out together.  Mom had a great time and was so surprised when they pulled in the driveway.  They hadn't seen each for quite a few years.

Mom is doing much better and we are glad to have her home!
We are not scheduled for anything until next Wednesday, July 16th, which is when mom is scheduled to start her last twelve radiation treatments.

The Charm of the Day

Silver Dog Bone

Day 52 at Cancer Treatment Centers of America

Friday, July 11th 2014

We came to Cancer Treatment Centers of America to see mom in her new room this morning.  Mom hasn't eaten anything by mouth in a few weeks and she actually ate some breakfast this morning.  She looked better than ever.  Mom even went for a walk down the hall to get some exercise.  She hasn't been outside in over a week so if she doesn't come home soon, that's our next goal.  She has a nice view overlooking the pond at the cafeteria.  I'm sure the view would be beautiful at night.  This is truly a five star hotel room!

Finally out of bed!

After we got back home, dad spoke with a member of mom's team, Ms. Hearn, and was told that since she could commute back and forth for her schedule, mom could check out tomorrow morning.  We called and told mom she was coming home and she was so excited!

Yesterday, on our way to CTCA, the Newnan Police Department were at the intersection of what was about to become formerly known as Parkway North and Bullsboro Drive.  Dad, Kayleigh and I watched as the street sign for Parkway North could be changed officially to Celebrate Life Parkway!

Day 51 at Cancer Treatment Centers of America

Thursday, July 10th 2014

Becky, David and Steven came to Cancer Treatment Centers of America to see mom and spend some time with her.  They were surprised at how good mom looked today. We took them for a tour of the property and then had lunch at the cafeteria.  Mom was very happy to see her family and was pretty upbeat today.  She is improving each and everyday and she was supposed to be moved to the hotel floor of CTCA this afternoon.

While Kayleigh and I were in the library, Cody and his master came by and Kayleigh asked if he could come see her grandmother in her room.  He brought Cody in to see mom and put a smile on her face.  He is such a great dog and brings smiles to everyone who sees him.

Becky brought a card with a Prayer Cloth from her church, The Bridge Church.

The Prayer Cloth has been anointed with oil and contains Acts 19:11-12.

After we were home, mom called and said she was in her new room on the hotel floor.  Toni and the girls drove back up to CTCA to see mom and her new room.  Her room is like a five star hotel room!

Day 50 at Cancer Treatment Centers of America

Wednesday, July 9th 2014

We came to CTCA this morning to see mom and she looked really good today!  Her feet and left elbow are still swollen.  The nurse came in and released mom from isolation.  No more masks or gloves and mom is less susceptible to catching anything!  Her blood cell counts are on the rise, too. 

 ZEN LANSCAPE II

Kelli Danis Fitzpatrick and Studio El

This is very positive news!  Her mouth looks great with only a couple of sores left.  Her mouth has been steadily healing everyday due to her platelets rising and using Medihoney and DeramQOL.  She was told that she will be released from Inpatient Care and will be moving up to the 3rd floor tomorrow which is the hotel.

Day 49 at Cancer Treatment Centers of America

Tuesday, July 8th 2014

Dad, Kayleigh and I headed up to Cancer Treatment Centers of America a little early today in order to be there when mom meets with Radiation Oncology.  The Hospital Doctor came in and said mom's white blood cell counts and platelets are coming up.  Ms. Summer Baptist came in after the doctor and said that she and Stephanie from Wound Care spoke and they decided the Medihoney and DermaQOL are the best for her mouth.  

At 11:00 a.m. the nurse from Radiology came to get us to meet with Dr. Gullett.  Dr. Gullett peeled mom's lips apart and examined her mouth and said it looks like everything is healing great.  Kathy McLaine and Dr. Gullett cleaned all of the dead skin off of mom's neck.  Dr. Gullett stated mom only had nine more radiation treatments left.  Now that she has been without radiation over a week, they need to get the simulation complete today for the new mask.  To get the mask prepared and everything set up will take a week which will give mom another week of healing.  When radiation is on hold, the cancer becomes more aggressively.  Our outcome is still projected the same as it was, mom will just have a little longer to go before she is cured.  Dr. Gullett stated that originally we were going for a cure and we will not change the plan other than now we will have twelve radiation treatments left on our schedule.  We are completely fine with adding more treatments to the plan, especially now that mom will have a mask that will keep her lips away from the radiation.

Out with the old
and in with the new.

Mom came back from the simulation with her old mask and the nurse connected the feeding machine and all of her fluids.  Toni and Kayleigh came up to CTCA this afternoon and Dad and I headed home.  Mom's feet and left elbow have started to swell but she is improving in so many ways.  

We are hopeful she will be coming home soon!

Day 48 at Cancer Treatment Centers of America

Monday, July 7th 2014

Jeannene, Michelle and her boys came to stay the day with mom at Cancer Treatment Centers of America.   Mom is still in isolation due to her blood levels and platelets being so low.  As long as no one has any symptoms of any kind of illness, it is fine to visit her.  When we arrived, mom's mouth was crusted shut from the scabs sticking together.  I spoke with one of mom's nurses about getting her lips apart and she explained to me that they have to leave her lips alone because her platelets are so low if the scabs were to be picked at or pulled off she would bleed badly.  I asked if this would get better soon and she stated that it would.  

After we visited mom for a while we all went to lunch at the cafeteria together and then took everyone on a tour of the property.  I believe the campus really amazed Jeannene and Michelle as they were quite surprised at all of the amenities here at CTCA!

Once we got back to mom's room, Ms. Summer Baptist, 

Naturopathic Oncology Provider & Acupuncturist, came in to go over mom's supplements and to discuss which supplements will be added back to her daily regiment.  It was a pleasure meeting with Ms. Baptist and she was very thorough in discussing mom's needs and condition.

"I joined Cancer Treatment Centers of America because I wanted to be part of a pioneering company that focuses on integrative, innovative and patient-centered care. I wanted to join a team that works together to provide our patients and their families with high-quality cancer care and support."
                        - Summer Baptist, MS, ND, LAc

As Ms. Baptist was leaving, Mr. Stephen Jackson, Chaplain, stopped by to check on mom as he often does.  Mr. Jackson read a few verses from the Bible and Jeannene asked if he would have a group prayer over mom and the family.  It was touching to stand in a circle holding hands around mom as he prayed.  Of course many were in tears afterwards but his prayer lifted every one's spirits.

Even though mom was tired and not feeling great, she was very excited to see everyone.  Jeannene, Michelle and the kids put a smile on her face and that's very important through her inpatient stay here at CTCA.

It's always hard to leave

We headed home later in the day and Toni came up to see mom after work.  We have no idea how long mom will be staying here but as long as she is here we know she is in the best possible care!

The Charm of the Day
Praying Hands

Day 45 at Cancer Treatment Centers of America

Friday, July 4th 2014

The Concierge seating area was empty today

Today was mom's 3rd morning waking up at Cancer Treatment Centers of America and it's the morning of Independence Day, the 4th of July. Due to today being a holiday, CTCA was literally empty except for a very limited staff.  Even though the staff members there today were working on a major holiday they still displayed such loving care and uplifting happiness.

No one in the usually
 busy hallway

Now that mom is under isolation due to her white blood cell counts being so low, we are all wearing masks and gloves if we go to touch her or assist her in any way.

Morning TV Land with MeeMaw

Mom continues to be on fluid therapy and was fed through her PEG Tube up until 9:00 am.  After her feeding was done the nurse came in and unhooked mom from all  monitors and machines and said it was okay if I helped give her a shower . I gave mom a nice warm shower and dressed her in new comfortable pajamas.  I noticed that her ankles and calves were swelling and that was due to taking in so much fluid therapy and not releasing the same amount.  So as I  changed her bed linens out I got her to sit up in the chair for a few and Kayleigh sat right by her side.


As She got back in her bed with clean sheets and blankets, I elevated her legs to help with the swelling.  I also applied a lot of  Medihoney to her lips and the nurse hooked her back up to the heart monitor and fluid therapy.

A few of the Limos and Buses were parked today

Dr. O. came in later this afternoon to go over her vitals signs and her current state of well being.  He explained that her kidney and liver functions are good.  Her blood levels seem to keep changing daily.  He was surprised that I told him her mouth looked great compared to this past Tuesday up until today.  He said if I had not told him her mouth was much better he would of said it was awful!  He is new to CTCA and it was a pleasure meeting him and we look forward to seeing more this weekend.

Day 44 at Cancer Treatment Centers of America

Thursday, July 3rd 2014

Front entrance bouquet for Independence Day

Today is the second morning for mom to wake up at CTCA. We all met up early this morning and mom seemed to be doing about the same.  Her mouth looked a lot better from the nurses applying Medihoney.  Medihoney is an amazing thing!  Today she is talking a little better and has actually gained 10 pounds over the past week.  As she rested on and off, we went shopping for her some clean linens and had lunch.  She has slept more today than she has since she was admitted.  She has woke up once to a serious nose bleed where the nurses had to come in and assist.  Later on she woke up with bleeding from the mouth again and coughing really bad . Today she says she feels awful and seems to be more lethargic.  Mom hasn't had any more pain medication since last night.  Her team added an antibiotic due to her white blood cell counts being so low it is believed that she is possibly fighting an infection.  Mom has also been plugged into the feeding pump which continuously feeds her Isosource throughout the day. Kayleigh and I stayed the night with her.

We went to the Art Expressions class down stairs and painted an American Flag for MeeMaw and we also made Patriotic Mason Jar candle holders and lanterns later that evening.  After we were settled in, around midnight mom's nurse woke me up to put on a mask.  She started to explain to me that as of right now mom is going to be under isolation due to her white blood cell counts dropping.  As she told me this I started to hurt and worry if I was doing mom any harm by staying with her.  The nurse assured me that Kayleigh and I were fine next to her, that we would just have to wear a mask and gloves if we were going to be around her.  Any visitors needed to wear the same until her blood counts came back up.  Mom seemed to sleep a little more than the night before.

Day 43 at Cancer Treatment Centers of America

Wednesday, July 2nd 2014

This morning was the first morning waking up in Cancer Treatment Centers of America.

Mom didn't sleep much the night before . The nurses had to change the bedding during the night because mom continued to bleed out of her nose and mouth. She spent the day hooked up to continuous fluids and and had a Chest X-ray performed in her room . She was taken down at 10:30 a.m. for a CT scan but her mouth was too sore and scabbed over so it was rescheduled for a week from now.

She spent the day resting on and off. They gave her another two units of blood and also units of platelets.  Her white blood cells are low now and her red blood cells are reading in the normal range.

You can tell mom fights sleep when anyone is around so I decided to stay late by her side but to drive home before bedtime so she could get some rest.

The Charm of the Day

Aurora Borealis

Day 42 at Cancer Treatment Centers of America

Tuesday, July 1st 2014

This morning on our way to Cancer Treatment Centers of America, mom's mouth and lips looked worse than they ever have.  They are continuously bleeding and she said she had another nose bleed this morning also.

First thing on mom's schedule was to have blood drawn and then to see Dr. Gullett at 10:00 a.m. When Dr. Gullett saw mom and us in the hallway, she took us straight into her office and started to look at mom and questioning how long she had been bleeding.  It was a bit alarming to meet with Dr. Gullett in her office instead of an exam room, we knew something major was about to happen.  You could see the concern in her as soon as she started talking to mom.  She immediately said she was going to admit mom into the hospital and explained why she thought this was the best way for her.  She said the chemotherapy is causing her red blood counts to drop to a low level which makes mom's body unable to form clots.  With the radiation attacking the tumors through her lips, she will continue to bleed.

Dr. Gullett wanted mom to be monitored around the clock to get her blood counts back up and to be able to form clots to stop the bleeding before we went forward with anymore chemotherapy or radiation.  Dr. Gullett said that mom has fought too hard and long and this was just another step in our journey.  We were aware things would get a lot worse before they would get better as almost everything in life.  As she said the words "admit you", you could see it in mom's face she was not only scared but also very upset.  We assured mom that she would never be alone.  It wasn't long before mom was put in a wheel chair and brought to her room.  The rooms here are more like huge hotel rooms and do not feel like a hospital room at all.  They ordered fluid therapy and pain management.  At around 3:30 pm, mom's temperature was taken and had a fever again of 101.9.  The nurse placed the leg sleeves on mom to prevent blood clots and started the Fentanyl patches for pain.  I spent the night with mom and she didn't sleep very much!

The Cross is the Charm of the Day