Day 54 at Cancer Treatment Centers of America

Wednesday, July 16th 2014

After four days off, we were back at Cancer Treatment Centers of America this morning early for a full day's schedule.  Mom had blood drawn at 8:00 a.m..  During the nurse assessment, mom weighed in at 107 pounds, she has lost 7 pounds since the last weigh in.  Now that she is properly nourished her body is using her nutrients to fight the cancer.  We were told to expect this.  Her blood pressure and temperature were normal.  

The Chapel

Mom's tongue was sore and raw which is a side effect of the Chemotherapy.  At 9:30 a.m., we met with Leticia, Dr. McKnight's nurse.  Mom's Hemoglobin is up to 9.4 and 6.8 for the white blood cell counts.  Dr. McKnight's team are planning on returning to Chemo treatments starting next week.  Mom will only have the Taxol and not the Carbo for the next two weeks and after that Dr. McKnight will evaluate her progress and decide on a plan going forward.  They don't want her blood levels to drop again.  Edra Spevack, mom's Naturopathy checked to make sure she is still doing well on the supplements that mom is on.  She must start using L-Glutamine again which will help her tongue and mouth going forward.

Mom went back to radiation at 10:45 a.m., to use the new mask and start radiation treatments again.  When she came out of treatment she was very happy with the new mask, no pain or aggravation.  Her last appointment today was with Ms. Jennifer Cargile, Speech-Language Pathologist.  Ms. Cargile said her throat muscles and her ability to swallow are both working really well.

We will back tomorrow for radiation.  Only eleven more radiation treatments!

Day 53, Coming Home from Cancer Treatment Centers of America

Saturday, July 12th 2014

Dad, Gabie and I drove to Cancer Treatment Centers of America to pick up mom this morning!  We arrived and mom was ready to go.  She was dressed, packed and waiting on us to check out. Gabie and I carried her belongings to the car so we could pick her and dad up at the front door, but mom decided to walk to the car instead.

When we got her home, Toni, Steven and Kayleigh were waiting for us.  Mom was so excited to see everyone and be home!  Duke, the family dog, was happy to see her too!  We had to put him on the leash to keep him from tackling mom because he has missed her so much!  When mom had the nose bleed and was admitted into CTCA, Duke went through the trash can and pulled all of her bloody tissues out and laid them in a pile in her bedroom.  Duke has never pulled anything out of the trash before.  If you were to sit in her chair at the kitchen table, Duke would nudge you with his nose and if you didn't move out of her seat he would try to bite at you!

Debbie and Mom

Mom had some surprise visitors after she was home.  Lifelong friends, Debbie and Gerald, came to see her this afternoon and brought her some new pajamas for when she is just lounging around.  We all reminisced and enjoyed hanging out together.  Mom had a great time and was so surprised when they pulled in the driveway.  They hadn't seen each for quite a few years.

Mom is doing much better and we are glad to have her home!
We are not scheduled for anything until next Wednesday, July 16th, which is when mom is scheduled to start her last twelve radiation treatments.

The Charm of the Day

Silver Dog Bone

Day 52 at Cancer Treatment Centers of America

Friday, July 11th 2014

We came to Cancer Treatment Centers of America to see mom in her new room this morning.  Mom hasn't eaten anything by mouth in a few weeks and she actually ate some breakfast this morning.  She looked better than ever.  Mom even went for a walk down the hall to get some exercise.  She hasn't been outside in over a week so if she doesn't come home soon, that's our next goal.  She has a nice view overlooking the pond at the cafeteria.  I'm sure the view would be beautiful at night.  This is truly a five star hotel room!

Finally out of bed!

After we got back home, dad spoke with a member of mom's team, Ms. Hearn, and was told that since she could commute back and forth for her schedule, mom could check out tomorrow morning.  We called and told mom she was coming home and she was so excited!

Yesterday, on our way to CTCA, the Newnan Police Department were at the intersection of what was about to become formerly known as Parkway North and Bullsboro Drive.  Dad, Kayleigh and I watched as the street sign for Parkway North could be changed officially to Celebrate Life Parkway!

Day 51 at Cancer Treatment Centers of America

Thursday, July 10th 2014

Becky, David and Steven came to Cancer Treatment Centers of America to see mom and spend some time with her.  They were surprised at how good mom looked today. We took them for a tour of the property and then had lunch at the cafeteria.  Mom was very happy to see her family and was pretty upbeat today.  She is improving each and everyday and she was supposed to be moved to the hotel floor of CTCA this afternoon.

While Kayleigh and I were in the library, Cody and his master came by and Kayleigh asked if he could come see her grandmother in her room.  He brought Cody in to see mom and put a smile on her face.  He is such a great dog and brings smiles to everyone who sees him.

Becky brought a card with a Prayer Cloth from her church, The Bridge Church.

The Prayer Cloth has been anointed with oil and contains Acts 19:11-12.

After we were home, mom called and said she was in her new room on the hotel floor.  Toni and the girls drove back up to CTCA to see mom and her new room.  Her room is like a five star hotel room!

Day 49 at Cancer Treatment Centers of America

Tuesday, July 8th 2014

Dad, Kayleigh and I headed up to Cancer Treatment Centers of America a little early today in order to be there when mom meets with Radiation Oncology.  The Hospital Doctor came in and said mom's white blood cell counts and platelets are coming up.  Ms. Summer Baptist came in after the doctor and said that she and Stephanie from Wound Care spoke and they decided the Medihoney and DermaQOL are the best for her mouth.  

At 11:00 a.m. the nurse from Radiology came to get us to meet with Dr. Gullett.  Dr. Gullett peeled mom's lips apart and examined her mouth and said it looks like everything is healing great.  Kathy McLaine and Dr. Gullett cleaned all of the dead skin off of mom's neck.  Dr. Gullett stated mom only had nine more radiation treatments left.  Now that she has been without radiation over a week, they need to get the simulation complete today for the new mask.  To get the mask prepared and everything set up will take a week which will give mom another week of healing.  When radiation is on hold, the cancer becomes more aggressively.  Our outcome is still projected the same as it was, mom will just have a little longer to go before she is cured.  Dr. Gullett stated that originally we were going for a cure and we will not change the plan other than now we will have twelve radiation treatments left on our schedule.  We are completely fine with adding more treatments to the plan, especially now that mom will have a mask that will keep her lips away from the radiation.

Out with the old
and in with the new.

Mom came back from the simulation with her old mask and the nurse connected the feeding machine and all of her fluids.  Toni and Kayleigh came up to CTCA this afternoon and Dad and I headed home.  Mom's feet and left elbow have started to swell but she is improving in so many ways.  

We are hopeful she will be coming home soon!

Day 48 at Cancer Treatment Centers of America

Monday, July 7th 2014

Jeannene, Michelle and her boys came to stay the day with mom at Cancer Treatment Centers of America.   Mom is still in isolation due to her blood levels and platelets being so low.  As long as no one has any symptoms of any kind of illness, it is fine to visit her.  When we arrived, mom's mouth was crusted shut from the scabs sticking together.  I spoke with one of mom's nurses about getting her lips apart and she explained to me that they have to leave her lips alone because her platelets are so low if the scabs were to be picked at or pulled off she would bleed badly.  I asked if this would get better soon and she stated that it would.  

After we visited mom for a while we all went to lunch at the cafeteria together and then took everyone on a tour of the property.  I believe the campus really amazed Jeannene and Michelle as they were quite surprised at all of the amenities here at CTCA!

Once we got back to mom's room, Ms. Summer Baptist, 

Naturopathic Oncology Provider & Acupuncturist, came in to go over mom's supplements and to discuss which supplements will be added back to her daily regiment.  It was a pleasure meeting with Ms. Baptist and she was very thorough in discussing mom's needs and condition.

"I joined Cancer Treatment Centers of America because I wanted to be part of a pioneering company that focuses on integrative, innovative and patient-centered care. I wanted to join a team that works together to provide our patients and their families with high-quality cancer care and support."
                        - Summer Baptist, MS, ND, LAc

As Ms. Baptist was leaving, Mr. Stephen Jackson, Chaplain, stopped by to check on mom as he often does.  Mr. Jackson read a few verses from the Bible and Jeannene asked if he would have a group prayer over mom and the family.  It was touching to stand in a circle holding hands around mom as he prayed.  Of course many were in tears afterwards but his prayer lifted every one's spirits.

Even though mom was tired and not feeling great, she was very excited to see everyone.  Jeannene, Michelle and the kids put a smile on her face and that's very important through her inpatient stay here at CTCA.

It's always hard to leave

We headed home later in the day and Toni came up to see mom after work.  We have no idea how long mom will be staying here but as long as she is here we know she is in the best possible care!

The Charm of the Day
Praying Hands

Day 45 at Cancer Treatment Centers of America

Friday, July 4th 2014

The Concierge seating area was empty today

Today was mom's 3rd morning waking up at Cancer Treatment Centers of America and it's the morning of Independence Day, the 4th of July. Due to today being a holiday, CTCA was literally empty except for a very limited staff.  Even though the staff members there today were working on a major holiday they still displayed such loving care and uplifting happiness.

No one in the usually
 busy hallway

Now that mom is under isolation due to her white blood cell counts being so low, we are all wearing masks and gloves if we go to touch her or assist her in any way.

Morning TV Land with MeeMaw

Mom continues to be on fluid therapy and was fed through her PEG Tube up until 9:00 am.  After her feeding was done the nurse came in and unhooked mom from all  monitors and machines and said it was okay if I helped give her a shower . I gave mom a nice warm shower and dressed her in new comfortable pajamas.  I noticed that her ankles and calves were swelling and that was due to taking in so much fluid therapy and not releasing the same amount.  So as I  changed her bed linens out I got her to sit up in the chair for a few and Kayleigh sat right by her side.


As She got back in her bed with clean sheets and blankets, I elevated her legs to help with the swelling.  I also applied a lot of  Medihoney to her lips and the nurse hooked her back up to the heart monitor and fluid therapy.

A few of the Limos and Buses were parked today

Dr. O. came in later this afternoon to go over her vitals signs and her current state of well being.  He explained that her kidney and liver functions are good.  Her blood levels seem to keep changing daily.  He was surprised that I told him her mouth looked great compared to this past Tuesday up until today.  He said if I had not told him her mouth was much better he would of said it was awful!  He is new to CTCA and it was a pleasure meeting him and we look forward to seeing more this weekend.

Day 44 at Cancer Treatment Centers of America

Thursday, July 3rd 2014

Front entrance bouquet for Independence Day

Today is the second morning for mom to wake up at CTCA. We all met up early this morning and mom seemed to be doing about the same.  Her mouth looked a lot better from the nurses applying Medihoney.  Medihoney is an amazing thing!  Today she is talking a little better and has actually gained 10 pounds over the past week.  As she rested on and off, we went shopping for her some clean linens and had lunch.  She has slept more today than she has since she was admitted.  She has woke up once to a serious nose bleed where the nurses had to come in and assist.  Later on she woke up with bleeding from the mouth again and coughing really bad . Today she says she feels awful and seems to be more lethargic.  Mom hasn't had any more pain medication since last night.  Her team added an antibiotic due to her white blood cell counts being so low it is believed that she is possibly fighting an infection.  Mom has also been plugged into the feeding pump which continuously feeds her Isosource throughout the day. Kayleigh and I stayed the night with her.

We went to the Art Expressions class down stairs and painted an American Flag for MeeMaw and we also made Patriotic Mason Jar candle holders and lanterns later that evening.  After we were settled in, around midnight mom's nurse woke me up to put on a mask.  She started to explain to me that as of right now mom is going to be under isolation due to her white blood cell counts dropping.  As she told me this I started to hurt and worry if I was doing mom any harm by staying with her.  The nurse assured me that Kayleigh and I were fine next to her, that we would just have to wear a mask and gloves if we were going to be around her.  Any visitors needed to wear the same until her blood counts came back up.  Mom seemed to sleep a little more than the night before.

Day 43 at Cancer Treatment Centers of America

Wednesday, July 2nd 2014

This morning was the first morning waking up in Cancer Treatment Centers of America.

Mom didn't sleep much the night before . The nurses had to change the bedding during the night because mom continued to bleed out of her nose and mouth. She spent the day hooked up to continuous fluids and and had a Chest X-ray performed in her room . She was taken down at 10:30 a.m. for a CT scan but her mouth was too sore and scabbed over so it was rescheduled for a week from now.

She spent the day resting on and off. They gave her another two units of blood and also units of platelets.  Her white blood cells are low now and her red blood cells are reading in the normal range.

You can tell mom fights sleep when anyone is around so I decided to stay late by her side but to drive home before bedtime so she could get some rest.

The Charm of the Day

Aurora Borealis

Day 42 at Cancer Treatment Centers of America

Tuesday, July 1st 2014

This morning on our way to Cancer Treatment Centers of America, mom's mouth and lips looked worse than they ever have.  They are continuously bleeding and she said she had another nose bleed this morning also.

First thing on mom's schedule was to have blood drawn and then to see Dr. Gullett at 10:00 a.m. When Dr. Gullett saw mom and us in the hallway, she took us straight into her office and started to look at mom and questioning how long she had been bleeding.  It was a bit alarming to meet with Dr. Gullett in her office instead of an exam room, we knew something major was about to happen.  You could see the concern in her as soon as she started talking to mom.  She immediately said she was going to admit mom into the hospital and explained why she thought this was the best way for her.  She said the chemotherapy is causing her red blood counts to drop to a low level which makes mom's body unable to form clots.  With the radiation attacking the tumors through her lips, she will continue to bleed.

Dr. Gullett wanted mom to be monitored around the clock to get her blood counts back up and to be able to form clots to stop the bleeding before we went forward with anymore chemotherapy or radiation.  Dr. Gullett said that mom has fought too hard and long and this was just another step in our journey.  We were aware things would get a lot worse before they would get better as almost everything in life.  As she said the words "admit you", you could see it in mom's face she was not only scared but also very upset.  We assured mom that she would never be alone.  It wasn't long before mom was put in a wheel chair and brought to her room.  The rooms here are more like huge hotel rooms and do not feel like a hospital room at all.  They ordered fluid therapy and pain management.  At around 3:30 pm, mom's temperature was taken and had a fever again of 101.9.  The nurse placed the leg sleeves on mom to prevent blood clots and started the Fentanyl patches for pain.  I spent the night with mom and she didn't sleep very much!

The Cross is the Charm of the Day

Day 41 at Cancer Treatment Centers of America

Friday, June 27th 2014

Mom woke up at 3:00 this morning with a massive nose bleed.  We arrived at Cancer Treatment Centers of America early for mom's 11:50 am radiation treatment appointment to inform Dr. Gullett about the nose bleed.  Mom's mouth is in bad shape too!  Her mouth is swollen and covered in blisters and scabs.  Dr. Gullett canceled radiation for today and Monday to give mom a much needed break.  We have to meet with her team Tuesday morning at 10:00 am before radiation for mom's weekly check up.

We had over an hour wait for mom's blood transfusion appointment in Quality of Life Infusion so we decided to head out for a little while.  Once we arrived back for her appointment, her temperature was 99.3, BP 122/60.  After mom took the Tylenol her temperature went up to 101.3, and then 102.8.  The nurse held the blood transfusion due to the fever again and gave mom another dose of Tylenol.  If mom has a fever of 100.5, or higher the transfusion cannot be performed due to the risk of infection.  The nurse spoke to mom's doctor and they ordered a chest x-ray and blood cultures.  At 5:00 pm, mom's temperature came down and they started the first of two units of blood.  

Once mom was all set up in infusion, dad and I headed home and Toni came for the second half.  The second unit of blood finished around 8:30 pm and the nurse came in and said that mom's Chest X-Ray came back normal and since her temperature hadn't spiked she could go home.  Toni got her home and into bed.

The Charm of the Day is Ruby Red

Day 40 at Cancer Treatment Centers of America

Thursday, June 26th 2014

Today Kayleigh and I took mom to Cancer Treatment Centers of America to have radiation prep and treatment.  Her mouth was extremely sore and her lips are scabbed up pretty badly.  Right before we arrived, mom took the Hydrocodone and Lidocaine along with the lolly pop to try and numb her mouth and throat before the treatment.  Next on the schedule was wound consultation.  Stephanie reviewed mom's neck and chest area to see how the radiation is burning her skin.  Mom is using Silvadene immediately following each radiation treatment and each night before bedtime.



Stephanie said she was looking pretty good other than her lips.  Mom has been using Aquaphor on her lips to help heal from radiation treatments.  Stephanie added DermaQOL to be used on her lips too.

We had over an hour wait until mom's 2:00 p.m. appointment for the Blood Transfusion in Quality of Life so we decided to venture out and go for a ride to see the City Square of Newnan.

Once we had lunch back at the cafeteria we headed up to Quality of Life.  Mom's blood pressure was 98/55 but unfortunately she had a fever of 101.4 degrees so the blood transfusion couldn't begin.  A temperature of 100.5 or higher can lead to an infection.  A urine sample and blood cultures were ordered to try and find out where the fever is coming from and there was no sign of a urinary tract infection or anything.  She is not feel well due to her hemoglobin being so low.  The Blood Transfusion was rescheduled for 1:00 p.m., tomorrow and we were released from infusion at 4:00 p.m..

The Charm of the Day

A Silver and Amethyst Crown

Day 36 at Cancer Treatment Centers of America

Friday, June 20th 2014

Today was a light day for mom.  The only appointment on today's schedule at CTCA was radiation prep and treatment.  

Everything went well with the today's treatment and we found out we do not have to come back this weekend for a Neupogen shot!  Two days off for mom will do her some good.

The Charm of the Day

Blue Hearts

Day 27 at Cancer Treatment Centers of America

Wednesday, June 11th 2014

Today was our 27th day at Cancer Treatment Centers of America.  Radiation was scheduled at 8:45 this morning, followed by a meeting with Dr. Gullett and Kathy McLaine at 9:50 a.m..

Dr. Gullet ordered Silvadene to heal the scab on her chin that is bring caused from the radiation mask not fitting  Mom is unable to properly use the bite block in her mask for the daily radiation treatments due to the pain.  Dr. Gullett brought in a physicist to determine what changes are needed to be made to her mask for her to continue and complete the radiation treatment plan.   A Fentanyl patch was added to give mom a long acting Duragesic due mom's pain level is at a nine and Dr. Gullett wants her at no more than a two.  Mom is to continue using the Magic Mouthwash before and a salt water rinse directly following each meal.

Organic Pop Corn from 180 Degree Farm

The only other appointment was her weekly Speach Language Follow Up with Ms. Jennifer Cargile.  Ms. Cargile said mom's throat muscles are still working well even though she is in alot of pain.  She's able to swollow but it's very painful.  

The Charm of the Day 

Day 25 at Cancer Treatment Centers of America

Monday June 9th 2014

Today was our 25th day at Cancer Treatment Centers of America.  We arrived at 8:00 am for mom's scheduled Acupuncture Session at 8:15 with Dr. Harris Frank.  Within minutes, mom came back out and said she didn't need Acupuncture.  It seemed a little strange to me so we checked and mom got confused and refused treatment.  We rescheduled her session because we believe it will truly help with many of the things mom is experiencing.

Since mom didn't have acupuncture today she was early for her daily radiation prep and radiation treatment.  Radiology took her right back.  While mom was in treatment I called our Care Manager to have the Neupogen shots delivered to their home.  The out of pocket cost for the home delivery was more expensive than traveling back and forth to CTCA, so we canceled the order and decided to come on Saturday and Sunday instead.

The Charm of the Day; ΙΧΘΥΣ

Ichthys

Day 24 at Cancer Treatment Centers of America

Sunday, June 8th 2014

Today was mom's second Neupogen shot and her appointment was at 10:00 a.m.  We went up to Quality of  Life and the nurse showed me how to administer the shots to mom in either the back of her arms or even in her stomach.  These Neupogen shots are to be administered on Saturdays and Sundays following her Chemotherapy sessions on Tuesdays. The plan is to have the shots delivered to our parent's home and save her a trip over the weekends . Today the injection seemed to burn going into the back of her arm but our mom is amazingly strong and was fine right afterwards.

 Today, Steven was able to come and experience CTCA for the first time.  After the nurse in infusion was finished with mom's shot, we all went for breakfast at the wonderful cafeteria and then gave Steven a tour of the resort style campus. 

The Charm of the Day is Garnet,
Steven's Birthstone.

Day 23 at Cancer Treatment Centers of America

Saturday, June 7th 2014

Today was the first appointment for mom on a weekend at Cancer Treatment Centers of America.  It's quite a different place on the weekend.  The daily hustle and bustle was gone.  Our appointment in Quality of Life was at 10:00 a.m. for the Neupogen shot. We requested a blood pressure check because mom's blood pressure has been very low at times.  Luckily today mom's blood pressure was better, it was 113/63 and her pulse was 73.

Today was also Duane's first visit to CTCA and he found the center to be a little overwhelming.  It's not your usual medical facility, CTCA is more like a resort than a hospital. After the nurse taught us how to administer the Neupogen shot, we ran into our friend Denise Harris.  She said her tumors were shrinking and they had to do a new radiation simulation and altered her radiation treatment plan.  God is good!

The Charm of the Day is Amethyst, 

Duane's Birthstone.

Day 22 at Cancer Treatment Centers of America

Friday, June 6th 2014

Today at Cancer Treatment Centers of America we had a really short schedule!  Mom was just scheduled for radiation prep and treatment.  Today was her twelfth radiation treatment so we only have 23 more to go!

The Charm of the Day

A Simple Day

Day 20 at Cancer Treatment Centers of America

Wednesday, June 4th 2014

Today is moms twentieth day here at Cancer Treatment Centers Of America. On our way to the center, we received a phone call from Radiation Oncology that they wanted to start earlier with mom so as soon as we checked in we were called back.

We started our day off in radiation and she has gained 2 pounds!  Mom now weighs 113 lbs.  We first met with Dr. Gullett, mom's Radiation Oncologist and Kathy McLaine, mom's Care Manager.  They checked mom's blood pressure and it was dangerously low yesterday but today it seems to be a little better. They are still very concerned with her numbers and how dehydrated she is starting to get so early into treatment.  We were instructed to work our way up by giving mom 30 syringes containing 60CCs of water through her feeding tube along with Gatorade mixed with water by mouth.  Also rinsing her mouth with warm salt water after each meal and before bedtime.  Dr. Gullett took a look at mom's mouth and throat and said things look to be improving . She doesn't like to use the word "better" because everything is red and irritated from the radiation.  As we were leaving mom's radiation checkup, mom went in for her daily radiation treatment and we went for lunch.

After we ate lunch, mom came out of radiation and straight into her speech therapy appointment and then onto physical therapy where a few more exercises were added her daily routine. 

Since our day started out way before scheduled we were way too early for mom's chemo appointment scheduled for 4:00pm so she was finally able to eat some lunch and take a small break.  Today we started a new type of chemo cocktail because the previous chemotherapy was effecting her hearing way too quickly!  The sessions only last 4 hours which also includes the the fluids.

Me and Mom had a little organic snack during chemo.
Anytime mom wants anything to eat is a good time.
The cafe here at CTCA is unbelievable

The Charm of the Day is a Silver Horseshoe with Crystals.