Day 61 at Cancer Treatment Centers of America

Monday, July 28th, 2014

    This morning we arrived at the CTCA at 8:00 a.m..  Meemaw could not walk much so I had to run in and go get a wheelchair for her.  I let her sit down and then we went in for her appointments.  She had radiation at 8:45 a.m., so I pushed her all the way down to radiology and I got her checked in.  The nurse said that we could go on back to the radiation waiting room already.  Today was a fast and I mean really fast day, we sat down in the waiting room and within ten minutes the nurse took her back.  I went to the lobby and sat down with Uncle Bubba, Papa, and my little sister Kayleigh.

We went to the new Cancer Fighters Center and it was really neat.  They aren't completely finished with it.   We stayed for about ten minutes then we went back down stairs to wait on Meemaw.

The pictures hanging in the Cancer Fighters Center

In about 5 more minutes Meemaw came out and it was time for our next appointment on the schedule.

 Next on the schedule was a blood draw.  Then, she had to get an x-ray on her stomach because she had been experiencing stomach pains and nausea this past weekend.  Uncle Bubba, Meemaw and I had to go back into a room to see the Quality of Life doctor.  The doctor came in and told us that everything was fine and normal with her x-ray and blood work except for her potassium again. Her docter gave her some kind of liquid called kayexalate that reduces her potassium and it makes her use the bathroom (if you know what I mean).  Then we got in the car and went home and when we got home she drank it but it did nothing to her!  Weird right?
   

Day 57 at Cancer Treatment Centers of America

Tuesday, July 22nd 2014

Yesterday, mom said she didn't feel well and decided not to go for her appointments at CTCA.  The schedule for yesterday was a full load including her next Chemotherapy Treatment and now the entire schedule has to be reworked.

Dad and I spoke with Dr. Gullett, mom's Radiologist, in the lobby about mom's progress.  Dr. Gullett and Kathy McLaine are two of the nicest people I have ever met.  She and Kathy corrected the insurance issues regarding mom's Fentanyl patches so she can start back using the long lasting Duragesic. She is to be on 37.5 micrograms of Fentanly now.  Her attitude is a lot better and she is less irritable when she has the patches.  

You can really tell she desperately wants to eat because she continues to try every time we go out or eat at the cafeteria.  Her tongue is still raw from the treatments and nothing is really providing relief at this point in the process.  We have our weekly meeting with Dr. Gullett and her team tomorrow as well as her nurse assessment and blood draw so hopefully everything continues to go well.  Graduation from Radiation is just a couple of weeks away!

Day 56 at Cancer Treatment Centers of America

Friday, July 18th 2014

ZEN LANDSCAPE III

Today was our 56th day at CTCA for another radiation treatment and mom is still handling the treatments well with the new mask.  We have nine more treatments to go before graduation day!

Kelli Dani Fitzpatrick and Studio El

There really isn't much else to report from today.  We will be back Monday for a full day's schedule including Chemotherapy and the fifth of nine more radiation treatments.

Day 50 at Cancer Treatment Centers of America

Wednesday, July 9th 2014

We came to CTCA this morning to see mom and she looked really good today!  Her feet and left elbow are still swollen.  The nurse came in and released mom from isolation.  No more masks or gloves and mom is less susceptible to catching anything!  Her blood cell counts are on the rise, too. 

 ZEN LANSCAPE II

Kelli Danis Fitzpatrick and Studio El

This is very positive news!  Her mouth looks great with only a couple of sores left.  Her mouth has been steadily healing everyday due to her platelets rising and using Medihoney and DeramQOL.  She was told that she will be released from Inpatient Care and will be moving up to the 3rd floor tomorrow which is the hotel.

Day 49 at Cancer Treatment Centers of America

Tuesday, July 8th 2014

Dad, Kayleigh and I headed up to Cancer Treatment Centers of America a little early today in order to be there when mom meets with Radiation Oncology.  The Hospital Doctor came in and said mom's white blood cell counts and platelets are coming up.  Ms. Summer Baptist came in after the doctor and said that she and Stephanie from Wound Care spoke and they decided the Medihoney and DermaQOL are the best for her mouth.  

At 11:00 a.m. the nurse from Radiology came to get us to meet with Dr. Gullett.  Dr. Gullett peeled mom's lips apart and examined her mouth and said it looks like everything is healing great.  Kathy McLaine and Dr. Gullett cleaned all of the dead skin off of mom's neck.  Dr. Gullett stated mom only had nine more radiation treatments left.  Now that she has been without radiation over a week, they need to get the simulation complete today for the new mask.  To get the mask prepared and everything set up will take a week which will give mom another week of healing.  When radiation is on hold, the cancer becomes more aggressively.  Our outcome is still projected the same as it was, mom will just have a little longer to go before she is cured.  Dr. Gullett stated that originally we were going for a cure and we will not change the plan other than now we will have twelve radiation treatments left on our schedule.  We are completely fine with adding more treatments to the plan, especially now that mom will have a mask that will keep her lips away from the radiation.

Out with the old
and in with the new.

Mom came back from the simulation with her old mask and the nurse connected the feeding machine and all of her fluids.  Toni and Kayleigh came up to CTCA this afternoon and Dad and I headed home.  Mom's feet and left elbow have started to swell but she is improving in so many ways.  

We are hopeful she will be coming home soon!

Day 48 at Cancer Treatment Centers of America

Monday, July 7th 2014

Jeannene, Michelle and her boys came to stay the day with mom at Cancer Treatment Centers of America.   Mom is still in isolation due to her blood levels and platelets being so low.  As long as no one has any symptoms of any kind of illness, it is fine to visit her.  When we arrived, mom's mouth was crusted shut from the scabs sticking together.  I spoke with one of mom's nurses about getting her lips apart and she explained to me that they have to leave her lips alone because her platelets are so low if the scabs were to be picked at or pulled off she would bleed badly.  I asked if this would get better soon and she stated that it would.  

After we visited mom for a while we all went to lunch at the cafeteria together and then took everyone on a tour of the property.  I believe the campus really amazed Jeannene and Michelle as they were quite surprised at all of the amenities here at CTCA!

Once we got back to mom's room, Ms. Summer Baptist, 

Naturopathic Oncology Provider & Acupuncturist, came in to go over mom's supplements and to discuss which supplements will be added back to her daily regiment.  It was a pleasure meeting with Ms. Baptist and she was very thorough in discussing mom's needs and condition.

"I joined Cancer Treatment Centers of America because I wanted to be part of a pioneering company that focuses on integrative, innovative and patient-centered care. I wanted to join a team that works together to provide our patients and their families with high-quality cancer care and support."
                        - Summer Baptist, MS, ND, LAc

As Ms. Baptist was leaving, Mr. Stephen Jackson, Chaplain, stopped by to check on mom as he often does.  Mr. Jackson read a few verses from the Bible and Jeannene asked if he would have a group prayer over mom and the family.  It was touching to stand in a circle holding hands around mom as he prayed.  Of course many were in tears afterwards but his prayer lifted every one's spirits.

Even though mom was tired and not feeling great, she was very excited to see everyone.  Jeannene, Michelle and the kids put a smile on her face and that's very important through her inpatient stay here at CTCA.

It's always hard to leave

We headed home later in the day and Toni came up to see mom after work.  We have no idea how long mom will be staying here but as long as she is here we know she is in the best possible care!

The Charm of the Day
Praying Hands

Day 45 at Cancer Treatment Centers of America

Friday, July 4th 2014

The Concierge seating area was empty today

Today was mom's 3rd morning waking up at Cancer Treatment Centers of America and it's the morning of Independence Day, the 4th of July. Due to today being a holiday, CTCA was literally empty except for a very limited staff.  Even though the staff members there today were working on a major holiday they still displayed such loving care and uplifting happiness.

No one in the usually
 busy hallway

Now that mom is under isolation due to her white blood cell counts being so low, we are all wearing masks and gloves if we go to touch her or assist her in any way.

Morning TV Land with MeeMaw

Mom continues to be on fluid therapy and was fed through her PEG Tube up until 9:00 am.  After her feeding was done the nurse came in and unhooked mom from all  monitors and machines and said it was okay if I helped give her a shower . I gave mom a nice warm shower and dressed her in new comfortable pajamas.  I noticed that her ankles and calves were swelling and that was due to taking in so much fluid therapy and not releasing the same amount.  So as I  changed her bed linens out I got her to sit up in the chair for a few and Kayleigh sat right by her side.


As She got back in her bed with clean sheets and blankets, I elevated her legs to help with the swelling.  I also applied a lot of  Medihoney to her lips and the nurse hooked her back up to the heart monitor and fluid therapy.

A few of the Limos and Buses were parked today

Dr. O. came in later this afternoon to go over her vitals signs and her current state of well being.  He explained that her kidney and liver functions are good.  Her blood levels seem to keep changing daily.  He was surprised that I told him her mouth looked great compared to this past Tuesday up until today.  He said if I had not told him her mouth was much better he would of said it was awful!  He is new to CTCA and it was a pleasure meeting him and we look forward to seeing more this weekend.

Day 44 at Cancer Treatment Centers of America

Thursday, July 3rd 2014

Front entrance bouquet for Independence Day

Today is the second morning for mom to wake up at CTCA. We all met up early this morning and mom seemed to be doing about the same.  Her mouth looked a lot better from the nurses applying Medihoney.  Medihoney is an amazing thing!  Today she is talking a little better and has actually gained 10 pounds over the past week.  As she rested on and off, we went shopping for her some clean linens and had lunch.  She has slept more today than she has since she was admitted.  She has woke up once to a serious nose bleed where the nurses had to come in and assist.  Later on she woke up with bleeding from the mouth again and coughing really bad . Today she says she feels awful and seems to be more lethargic.  Mom hasn't had any more pain medication since last night.  Her team added an antibiotic due to her white blood cell counts being so low it is believed that she is possibly fighting an infection.  Mom has also been plugged into the feeding pump which continuously feeds her Isosource throughout the day. Kayleigh and I stayed the night with her.

We went to the Art Expressions class down stairs and painted an American Flag for MeeMaw and we also made Patriotic Mason Jar candle holders and lanterns later that evening.  After we were settled in, around midnight mom's nurse woke me up to put on a mask.  She started to explain to me that as of right now mom is going to be under isolation due to her white blood cell counts dropping.  As she told me this I started to hurt and worry if I was doing mom any harm by staying with her.  The nurse assured me that Kayleigh and I were fine next to her, that we would just have to wear a mask and gloves if we were going to be around her.  Any visitors needed to wear the same until her blood counts came back up.  Mom seemed to sleep a little more than the night before.

Day 43 at Cancer Treatment Centers of America

Wednesday, July 2nd 2014

This morning was the first morning waking up in Cancer Treatment Centers of America.

Mom didn't sleep much the night before . The nurses had to change the bedding during the night because mom continued to bleed out of her nose and mouth. She spent the day hooked up to continuous fluids and and had a Chest X-ray performed in her room . She was taken down at 10:30 a.m. for a CT scan but her mouth was too sore and scabbed over so it was rescheduled for a week from now.

She spent the day resting on and off. They gave her another two units of blood and also units of platelets.  Her white blood cells are low now and her red blood cells are reading in the normal range.

You can tell mom fights sleep when anyone is around so I decided to stay late by her side but to drive home before bedtime so she could get some rest.

The Charm of the Day

Aurora Borealis

Day 42 at Cancer Treatment Centers of America

Tuesday, July 1st 2014

This morning on our way to Cancer Treatment Centers of America, mom's mouth and lips looked worse than they ever have.  They are continuously bleeding and she said she had another nose bleed this morning also.

First thing on mom's schedule was to have blood drawn and then to see Dr. Gullett at 10:00 a.m. When Dr. Gullett saw mom and us in the hallway, she took us straight into her office and started to look at mom and questioning how long she had been bleeding.  It was a bit alarming to meet with Dr. Gullett in her office instead of an exam room, we knew something major was about to happen.  You could see the concern in her as soon as she started talking to mom.  She immediately said she was going to admit mom into the hospital and explained why she thought this was the best way for her.  She said the chemotherapy is causing her red blood counts to drop to a low level which makes mom's body unable to form clots.  With the radiation attacking the tumors through her lips, she will continue to bleed.

Dr. Gullett wanted mom to be monitored around the clock to get her blood counts back up and to be able to form clots to stop the bleeding before we went forward with anymore chemotherapy or radiation.  Dr. Gullett said that mom has fought too hard and long and this was just another step in our journey.  We were aware things would get a lot worse before they would get better as almost everything in life.  As she said the words "admit you", you could see it in mom's face she was not only scared but also very upset.  We assured mom that she would never be alone.  It wasn't long before mom was put in a wheel chair and brought to her room.  The rooms here are more like huge hotel rooms and do not feel like a hospital room at all.  They ordered fluid therapy and pain management.  At around 3:30 pm, mom's temperature was taken and had a fever again of 101.9.  The nurse placed the leg sleeves on mom to prevent blood clots and started the Fentanyl patches for pain.  I spent the night with mom and she didn't sleep very much!

The Cross is the Charm of the Day

Day 41 at Cancer Treatment Centers of America

Friday, June 27th 2014

Mom woke up at 3:00 this morning with a massive nose bleed.  We arrived at Cancer Treatment Centers of America early for mom's 11:50 am radiation treatment appointment to inform Dr. Gullett about the nose bleed.  Mom's mouth is in bad shape too!  Her mouth is swollen and covered in blisters and scabs.  Dr. Gullett canceled radiation for today and Monday to give mom a much needed break.  We have to meet with her team Tuesday morning at 10:00 am before radiation for mom's weekly check up.

We had over an hour wait for mom's blood transfusion appointment in Quality of Life Infusion so we decided to head out for a little while.  Once we arrived back for her appointment, her temperature was 99.3, BP 122/60.  After mom took the Tylenol her temperature went up to 101.3, and then 102.8.  The nurse held the blood transfusion due to the fever again and gave mom another dose of Tylenol.  If mom has a fever of 100.5, or higher the transfusion cannot be performed due to the risk of infection.  The nurse spoke to mom's doctor and they ordered a chest x-ray and blood cultures.  At 5:00 pm, mom's temperature came down and they started the first of two units of blood.  

Once mom was all set up in infusion, dad and I headed home and Toni came for the second half.  The second unit of blood finished around 8:30 pm and the nurse came in and said that mom's Chest X-Ray came back normal and since her temperature hadn't spiked she could go home.  Toni got her home and into bed.

The Charm of the Day is Ruby Red

Day 40 at Cancer Treatment Centers of America

Thursday, June 26th 2014

Today Kayleigh and I took mom to Cancer Treatment Centers of America to have radiation prep and treatment.  Her mouth was extremely sore and her lips are scabbed up pretty badly.  Right before we arrived, mom took the Hydrocodone and Lidocaine along with the lolly pop to try and numb her mouth and throat before the treatment.  Next on the schedule was wound consultation.  Stephanie reviewed mom's neck and chest area to see how the radiation is burning her skin.  Mom is using Silvadene immediately following each radiation treatment and each night before bedtime.



Stephanie said she was looking pretty good other than her lips.  Mom has been using Aquaphor on her lips to help heal from radiation treatments.  Stephanie added DermaQOL to be used on her lips too.

We had over an hour wait until mom's 2:00 p.m. appointment for the Blood Transfusion in Quality of Life so we decided to venture out and go for a ride to see the City Square of Newnan.

Once we had lunch back at the cafeteria we headed up to Quality of Life.  Mom's blood pressure was 98/55 but unfortunately she had a fever of 101.4 degrees so the blood transfusion couldn't begin.  A temperature of 100.5 or higher can lead to an infection.  A urine sample and blood cultures were ordered to try and find out where the fever is coming from and there was no sign of a urinary tract infection or anything.  She is not feel well due to her hemoglobin being so low.  The Blood Transfusion was rescheduled for 1:00 p.m., tomorrow and we were released from infusion at 4:00 p.m..

The Charm of the Day

A Silver and Amethyst Crown

Day 36 at Cancer Treatment Centers of America

Friday, June 20th 2014

Today was a light day for mom.  The only appointment on today's schedule at CTCA was radiation prep and treatment.  

Everything went well with the today's treatment and we found out we do not have to come back this weekend for a Neupogen shot!  Two days off for mom will do her some good.

The Charm of the Day

Blue Hearts

Day 35 at Cancer Treatment Centers of America

Thursday, June 19th 2014

Mom woke up this morning extremely dizzy and light headed.  Dad called Dr. Gullett's office to find out what to do.  Mom said she didn't think she would be able to make the ride to Cancer Treatment Centers of America today.  Kathy McLaine, mom's Radiology Care Manager, told dad to take the patch off and bring her in.  Yesterday, Dr. Gullet upped the dosage of the Fentanyl patch to 50 and it's too much for her.  They changed the dosage from 50 to 37.5 and mom went in for radiation prep and treatment.

The Charm of the Day

A Crown of Red Hearts 

Day 31 at Cancer Treatment Centers Of America

Sunday, June 15th 2014

Today's schedule at Cancer Treatment Centers of America was the same as yesterday.  Just a very simple and a quick appointment for mom to have her Neupogen injection at 11:30 in Quality Of Life.  Today she seems to feel a little better.  She didn't sleep as much so we were able to talk on our way there and on our way home.  The nurse today was very easy and quick with giving her the injection and that's what mom likes.  As we were leaving she wanted to try pineapple juice but it burned her mouth and throat too much and she wasn't able to swollow it.

So instead she wanted to stop and try a chocolate milkshake from McDonald's together on our way home.  She was able to drink a little but said it was too thick and had no taste.  When we arrived at home she went in to rest for the afternoon.

The Charm of The Day

Day 29 at Cancer Treatment Centers of America

Friday, June 13th 2014

We arrived at CTCA earlier than our scheduled appointment today in order for Radiology to check and make sure the mask will fit with adjustments that were made yesterday.  Mom took the Hydrocodone, Lidocaine and the lolly pop to numb her mouth and throat pain so she could receive radiation treatment.  Unfortunately, she came back after the appointment and was too sore to have a treatment today.  She has appointments for tomorrow and Sunday for Neupogen injections in infusion.

The Charm of the Day

Black and White Crystals

Day 28 at Cancer Treatment Centers of America

Thursday, June 12th 2014

First on our schedule today at CTCA was mom's radiation prep and treatment.  We applied her Fentanyl patch this morning before heading to the center as directed.  Radiology was unable to get her into her mask due to the pain in her mouth and throat even though mom took Hydrocodone and Lidocaine.  Dr. Gullett and our Care Manager Kathy McLaine met with us to discuss going forward with radiation and some changes to be made to the mask.  Debbie, one of the Physicist is going to reconfigure mom's mask to keep it from cutting into her chin.  Radiation has been reschedule for tomorrow morning at 8:30.  Mom was also prescribed some Lolly Pops that mom is to start sucking on for the pain.  She is to continue with the hydrocodone and lydacain along with the Magic Mouthwash and salt water rinses.

Acupuncture was schedule for 10:30 for a duration of 45 minutes with Dr. Harris Frank, Doctor of Medical Qigong.  He asked mom again if she was sure she wanted to have acupuncture since she refused it earlier in the week.  Dr. Frank explained to mom the benefits of acupuncture and the fact that it is not required but it is an option.  She agreed to have it done in hopes that it will help with her pain.  Dr. Frank placed the acupuncture needles on her arms and legs as well as her forehead and chin.  He asked if the pain was getting any better and she said she could feel some relief.  He asked if I wanted to stay while mom went through the relaxation period and I decided to step out so mom could experience it in full.  Dr. Frank turned off the lights, started some very relaxing music and mom went into relaxation mode!

"What I love about Cancer Treatment Centers of America is that here you have a model of care where the entire team comes together to create a treatment plan for the benefit of the patient, and that includes the wealth of resources Chinese medicine has to offer."
                                                                              - Harris Frank, LAc, Dipl OM, DMQ

The Charm of the Day is Peace!

Day 27 at Cancer Treatment Centers of America

Wednesday, June 11th 2014

Today was our 27th day at Cancer Treatment Centers of America.  Radiation was scheduled at 8:45 this morning, followed by a meeting with Dr. Gullett and Kathy McLaine at 9:50 a.m..

Dr. Gullet ordered Silvadene to heal the scab on her chin that is bring caused from the radiation mask not fitting  Mom is unable to properly use the bite block in her mask for the daily radiation treatments due to the pain.  Dr. Gullett brought in a physicist to determine what changes are needed to be made to her mask for her to continue and complete the radiation treatment plan.   A Fentanyl patch was added to give mom a long acting Duragesic due mom's pain level is at a nine and Dr. Gullett wants her at no more than a two.  Mom is to continue using the Magic Mouthwash before and a salt water rinse directly following each meal.

Organic Pop Corn from 180 Degree Farm

The only other appointment was her weekly Speach Language Follow Up with Ms. Jennifer Cargile.  Ms. Cargile said mom's throat muscles are still working well even though she is in alot of pain.  She's able to swollow but it's very painful.  

The Charm of the Day 

Day 25 at Cancer Treatment Centers of America

Monday June 9th 2014

Today was our 25th day at Cancer Treatment Centers of America.  We arrived at 8:00 am for mom's scheduled Acupuncture Session at 8:15 with Dr. Harris Frank.  Within minutes, mom came back out and said she didn't need Acupuncture.  It seemed a little strange to me so we checked and mom got confused and refused treatment.  We rescheduled her session because we believe it will truly help with many of the things mom is experiencing.

Since mom didn't have acupuncture today she was early for her daily radiation prep and radiation treatment.  Radiology took her right back.  While mom was in treatment I called our Care Manager to have the Neupogen shots delivered to their home.  The out of pocket cost for the home delivery was more expensive than traveling back and forth to CTCA, so we canceled the order and decided to come on Saturday and Sunday instead.

The Charm of the Day; ΙΧΘΥΣ

Ichthys

Day 24 at Cancer Treatment Centers of America

Sunday, June 8th 2014

Today was mom's second Neupogen shot and her appointment was at 10:00 a.m.  We went up to Quality of  Life and the nurse showed me how to administer the shots to mom in either the back of her arms or even in her stomach.  These Neupogen shots are to be administered on Saturdays and Sundays following her Chemotherapy sessions on Tuesdays. The plan is to have the shots delivered to our parent's home and save her a trip over the weekends . Today the injection seemed to burn going into the back of her arm but our mom is amazingly strong and was fine right afterwards.

 Today, Steven was able to come and experience CTCA for the first time.  After the nurse in infusion was finished with mom's shot, we all went for breakfast at the wonderful cafeteria and then gave Steven a tour of the resort style campus. 

The Charm of the Day is Garnet,
Steven's Birthstone.