Day 58 at Cancer Treatment Centers of America

Wednesday, July 23rd 2014

Mom woke up this morning extremely nauseous and sick.  She was scheduled for radiation at 9:25 a.m., but was unable to complete today's treatment due to her constant vomiting.  We now have ten more radiation treatments to go and Dr. Norleena Gullett really wants to do what ever it takes to get mom through these last treatments.  Zofran was administered through her port to stop the nausea.

During the weekly Radiation Oncology follow-up with Dr. Gullett and Kathy McLaine, Dr. Gullett asked dad to go to the car and bring in mom's bag with all of her medications and supplements.  Magic Mouthwash needs to be used 3 times a day again.  Aquaphore is to be used on her neck after radiation treatments and before going to bed.  Silvadene is not needed while there are no open wounds or a  threat of infection.  Dr. Gullett discontinued 10 supplements and medications.

Although, Gullett believes that all of the supplements that she is currently taking are great for her overall health, since mom is experiencing nausea, it's best to eliminate some things.

During the Nurse Assessment in the clinic with mom's nurse Dee, mom was weighed as usual and mom has lost another pound, now she is at 106.  After mom's appointment with Georgianna to go over any changes, it was time to met with Letitia Price, Nurse Practitioner, to review mom's blood work.  Everything was good except her potassium is elevated.  Her blood levels were off a bit probably from vomiting so much this morning.  Letitia ordered an hour of fluids to see how mom's blood work looks tomorrow.  Unfortunately, infusion couldn't fit her in until 5:00 p.m. and mom said not today.   The infusion has been rescheduled for tomorrow during her appointment for Chemotherapy at 10:00 a.m..

Day 48 at Cancer Treatment Centers of America

Monday, July 7th 2014

Jeannene, Michelle and her boys came to stay the day with mom at Cancer Treatment Centers of America.   Mom is still in isolation due to her blood levels and platelets being so low.  As long as no one has any symptoms of any kind of illness, it is fine to visit her.  When we arrived, mom's mouth was crusted shut from the scabs sticking together.  I spoke with one of mom's nurses about getting her lips apart and she explained to me that they have to leave her lips alone because her platelets are so low if the scabs were to be picked at or pulled off she would bleed badly.  I asked if this would get better soon and she stated that it would.  

After we visited mom for a while we all went to lunch at the cafeteria together and then took everyone on a tour of the property.  I believe the campus really amazed Jeannene and Michelle as they were quite surprised at all of the amenities here at CTCA!

Once we got back to mom's room, Ms. Summer Baptist, 

Naturopathic Oncology Provider & Acupuncturist, came in to go over mom's supplements and to discuss which supplements will be added back to her daily regiment.  It was a pleasure meeting with Ms. Baptist and she was very thorough in discussing mom's needs and condition.

"I joined Cancer Treatment Centers of America because I wanted to be part of a pioneering company that focuses on integrative, innovative and patient-centered care. I wanted to join a team that works together to provide our patients and their families with high-quality cancer care and support."
                        - Summer Baptist, MS, ND, LAc

As Ms. Baptist was leaving, Mr. Stephen Jackson, Chaplain, stopped by to check on mom as he often does.  Mr. Jackson read a few verses from the Bible and Jeannene asked if he would have a group prayer over mom and the family.  It was touching to stand in a circle holding hands around mom as he prayed.  Of course many were in tears afterwards but his prayer lifted every one's spirits.

Even though mom was tired and not feeling great, she was very excited to see everyone.  Jeannene, Michelle and the kids put a smile on her face and that's very important through her inpatient stay here at CTCA.

It's always hard to leave

We headed home later in the day and Toni came up to see mom after work.  We have no idea how long mom will be staying here but as long as she is here we know she is in the best possible care!

The Charm of the Day
Praying Hands

Day 42 at Cancer Treatment Centers of America

Tuesday, July 1st 2014

This morning on our way to Cancer Treatment Centers of America, mom's mouth and lips looked worse than they ever have.  They are continuously bleeding and she said she had another nose bleed this morning also.

First thing on mom's schedule was to have blood drawn and then to see Dr. Gullett at 10:00 a.m. When Dr. Gullett saw mom and us in the hallway, she took us straight into her office and started to look at mom and questioning how long she had been bleeding.  It was a bit alarming to meet with Dr. Gullett in her office instead of an exam room, we knew something major was about to happen.  You could see the concern in her as soon as she started talking to mom.  She immediately said she was going to admit mom into the hospital and explained why she thought this was the best way for her.  She said the chemotherapy is causing her red blood counts to drop to a low level which makes mom's body unable to form clots.  With the radiation attacking the tumors through her lips, she will continue to bleed.

Dr. Gullett wanted mom to be monitored around the clock to get her blood counts back up and to be able to form clots to stop the bleeding before we went forward with anymore chemotherapy or radiation.  Dr. Gullett said that mom has fought too hard and long and this was just another step in our journey.  We were aware things would get a lot worse before they would get better as almost everything in life.  As she said the words "admit you", you could see it in mom's face she was not only scared but also very upset.  We assured mom that she would never be alone.  It wasn't long before mom was put in a wheel chair and brought to her room.  The rooms here are more like huge hotel rooms and do not feel like a hospital room at all.  They ordered fluid therapy and pain management.  At around 3:30 pm, mom's temperature was taken and had a fever again of 101.9.  The nurse placed the leg sleeves on mom to prevent blood clots and started the Fentanyl patches for pain.  I spent the night with mom and she didn't sleep very much!

The Cross is the Charm of the Day

Day 41 at Cancer Treatment Centers of America

Friday, June 27th 2014

Mom woke up at 3:00 this morning with a massive nose bleed.  We arrived at Cancer Treatment Centers of America early for mom's 11:50 am radiation treatment appointment to inform Dr. Gullett about the nose bleed.  Mom's mouth is in bad shape too!  Her mouth is swollen and covered in blisters and scabs.  Dr. Gullett canceled radiation for today and Monday to give mom a much needed break.  We have to meet with her team Tuesday morning at 10:00 am before radiation for mom's weekly check up.

We had over an hour wait for mom's blood transfusion appointment in Quality of Life Infusion so we decided to head out for a little while.  Once we arrived back for her appointment, her temperature was 99.3, BP 122/60.  After mom took the Tylenol her temperature went up to 101.3, and then 102.8.  The nurse held the blood transfusion due to the fever again and gave mom another dose of Tylenol.  If mom has a fever of 100.5, or higher the transfusion cannot be performed due to the risk of infection.  The nurse spoke to mom's doctor and they ordered a chest x-ray and blood cultures.  At 5:00 pm, mom's temperature came down and they started the first of two units of blood.  

Once mom was all set up in infusion, dad and I headed home and Toni came for the second half.  The second unit of blood finished around 8:30 pm and the nurse came in and said that mom's Chest X-Ray came back normal and since her temperature hadn't spiked she could go home.  Toni got her home and into bed.

The Charm of the Day is Ruby Red

Day 40 at Cancer Treatment Centers of America

Thursday, June 26th 2014

Today Kayleigh and I took mom to Cancer Treatment Centers of America to have radiation prep and treatment.  Her mouth was extremely sore and her lips are scabbed up pretty badly.  Right before we arrived, mom took the Hydrocodone and Lidocaine along with the lolly pop to try and numb her mouth and throat before the treatment.  Next on the schedule was wound consultation.  Stephanie reviewed mom's neck and chest area to see how the radiation is burning her skin.  Mom is using Silvadene immediately following each radiation treatment and each night before bedtime.



Stephanie said she was looking pretty good other than her lips.  Mom has been using Aquaphor on her lips to help heal from radiation treatments.  Stephanie added DermaQOL to be used on her lips too.

We had over an hour wait until mom's 2:00 p.m. appointment for the Blood Transfusion in Quality of Life so we decided to venture out and go for a ride to see the City Square of Newnan.

Once we had lunch back at the cafeteria we headed up to Quality of Life.  Mom's blood pressure was 98/55 but unfortunately she had a fever of 101.4 degrees so the blood transfusion couldn't begin.  A temperature of 100.5 or higher can lead to an infection.  A urine sample and blood cultures were ordered to try and find out where the fever is coming from and there was no sign of a urinary tract infection or anything.  She is not feel well due to her hemoglobin being so low.  The Blood Transfusion was rescheduled for 1:00 p.m., tomorrow and we were released from infusion at 4:00 p.m..

The Charm of the Day

A Silver and Amethyst Crown

Day 28 at Cancer Treatment Centers of America

Thursday, June 12th 2014

First on our schedule today at CTCA was mom's radiation prep and treatment.  We applied her Fentanyl patch this morning before heading to the center as directed.  Radiology was unable to get her into her mask due to the pain in her mouth and throat even though mom took Hydrocodone and Lidocaine.  Dr. Gullett and our Care Manager Kathy McLaine met with us to discuss going forward with radiation and some changes to be made to the mask.  Debbie, one of the Physicist is going to reconfigure mom's mask to keep it from cutting into her chin.  Radiation has been reschedule for tomorrow morning at 8:30.  Mom was also prescribed some Lolly Pops that mom is to start sucking on for the pain.  She is to continue with the hydrocodone and lydacain along with the Magic Mouthwash and salt water rinses.

Acupuncture was schedule for 10:30 for a duration of 45 minutes with Dr. Harris Frank, Doctor of Medical Qigong.  He asked mom again if she was sure she wanted to have acupuncture since she refused it earlier in the week.  Dr. Frank explained to mom the benefits of acupuncture and the fact that it is not required but it is an option.  She agreed to have it done in hopes that it will help with her pain.  Dr. Frank placed the acupuncture needles on her arms and legs as well as her forehead and chin.  He asked if the pain was getting any better and she said she could feel some relief.  He asked if I wanted to stay while mom went through the relaxation period and I decided to step out so mom could experience it in full.  Dr. Frank turned off the lights, started some very relaxing music and mom went into relaxation mode!

"What I love about Cancer Treatment Centers of America is that here you have a model of care where the entire team comes together to create a treatment plan for the benefit of the patient, and that includes the wealth of resources Chinese medicine has to offer."
                                                                              - Harris Frank, LAc, Dipl OM, DMQ

The Charm of the Day is Peace!