Day 58 at Cancer Treatment Centers of America

Wednesday, July 23rd 2014

Mom woke up this morning extremely nauseous and sick.  She was scheduled for radiation at 9:25 a.m., but was unable to complete today's treatment due to her constant vomiting.  We now have ten more radiation treatments to go and Dr. Norleena Gullett really wants to do what ever it takes to get mom through these last treatments.  Zofran was administered through her port to stop the nausea.

During the weekly Radiation Oncology follow-up with Dr. Gullett and Kathy McLaine, Dr. Gullett asked dad to go to the car and bring in mom's bag with all of her medications and supplements.  Magic Mouthwash needs to be used 3 times a day again.  Aquaphore is to be used on her neck after radiation treatments and before going to bed.  Silvadene is not needed while there are no open wounds or a  threat of infection.  Dr. Gullett discontinued 10 supplements and medications.

Although, Gullett believes that all of the supplements that she is currently taking are great for her overall health, since mom is experiencing nausea, it's best to eliminate some things.

During the Nurse Assessment in the clinic with mom's nurse Dee, mom was weighed as usual and mom has lost another pound, now she is at 106.  After mom's appointment with Georgianna to go over any changes, it was time to met with Letitia Price, Nurse Practitioner, to review mom's blood work.  Everything was good except her potassium is elevated.  Her blood levels were off a bit probably from vomiting so much this morning.  Letitia ordered an hour of fluids to see how mom's blood work looks tomorrow.  Unfortunately, infusion couldn't fit her in until 5:00 p.m. and mom said not today.   The infusion has been rescheduled for tomorrow during her appointment for Chemotherapy at 10:00 a.m..

Day 44 at Cancer Treatment Centers of America

Thursday, July 3rd 2014

Front entrance bouquet for Independence Day

Today is the second morning for mom to wake up at CTCA. We all met up early this morning and mom seemed to be doing about the same.  Her mouth looked a lot better from the nurses applying Medihoney.  Medihoney is an amazing thing!  Today she is talking a little better and has actually gained 10 pounds over the past week.  As she rested on and off, we went shopping for her some clean linens and had lunch.  She has slept more today than she has since she was admitted.  She has woke up once to a serious nose bleed where the nurses had to come in and assist.  Later on she woke up with bleeding from the mouth again and coughing really bad . Today she says she feels awful and seems to be more lethargic.  Mom hasn't had any more pain medication since last night.  Her team added an antibiotic due to her white blood cell counts being so low it is believed that she is possibly fighting an infection.  Mom has also been plugged into the feeding pump which continuously feeds her Isosource throughout the day. Kayleigh and I stayed the night with her.

We went to the Art Expressions class down stairs and painted an American Flag for MeeMaw and we also made Patriotic Mason Jar candle holders and lanterns later that evening.  After we were settled in, around midnight mom's nurse woke me up to put on a mask.  She started to explain to me that as of right now mom is going to be under isolation due to her white blood cell counts dropping.  As she told me this I started to hurt and worry if I was doing mom any harm by staying with her.  The nurse assured me that Kayleigh and I were fine next to her, that we would just have to wear a mask and gloves if we were going to be around her.  Any visitors needed to wear the same until her blood counts came back up.  Mom seemed to sleep a little more than the night before.

Day 42 at Cancer Treatment Centers of America

Tuesday, July 1st 2014

This morning on our way to Cancer Treatment Centers of America, mom's mouth and lips looked worse than they ever have.  They are continuously bleeding and she said she had another nose bleed this morning also.

First thing on mom's schedule was to have blood drawn and then to see Dr. Gullett at 10:00 a.m. When Dr. Gullett saw mom and us in the hallway, she took us straight into her office and started to look at mom and questioning how long she had been bleeding.  It was a bit alarming to meet with Dr. Gullett in her office instead of an exam room, we knew something major was about to happen.  You could see the concern in her as soon as she started talking to mom.  She immediately said she was going to admit mom into the hospital and explained why she thought this was the best way for her.  She said the chemotherapy is causing her red blood counts to drop to a low level which makes mom's body unable to form clots.  With the radiation attacking the tumors through her lips, she will continue to bleed.

Dr. Gullett wanted mom to be monitored around the clock to get her blood counts back up and to be able to form clots to stop the bleeding before we went forward with anymore chemotherapy or radiation.  Dr. Gullett said that mom has fought too hard and long and this was just another step in our journey.  We were aware things would get a lot worse before they would get better as almost everything in life.  As she said the words "admit you", you could see it in mom's face she was not only scared but also very upset.  We assured mom that she would never be alone.  It wasn't long before mom was put in a wheel chair and brought to her room.  The rooms here are more like huge hotel rooms and do not feel like a hospital room at all.  They ordered fluid therapy and pain management.  At around 3:30 pm, mom's temperature was taken and had a fever again of 101.9.  The nurse placed the leg sleeves on mom to prevent blood clots and started the Fentanyl patches for pain.  I spent the night with mom and she didn't sleep very much!

The Cross is the Charm of the Day

Day 15 at Cancer Treatment Centers Of America

Wednesday, May 28th 2014

Today was a very easy day for mom but a very exciting day because "The Girls", (her grand daughters), were able to come to Cancer Treatment Centers of America for the first time and are now Meemaws new caregivers .

We started the morning out at CTCA with mom's radiation treatment and ended with a follow up appointment with Dr. Keith Kowal, ENT.  At her consultation Dr. Kowal wanted to check her hearing once again and mentioned having hearing aides added to her schedule . 

The Charm of the Day is Silver with Purple Crystals.
(Chosen by Kayleigh)

Today completes the first bracelet.

Day 12 at Cancer Treatment Centers of America

Thursday, May 22nd 2014

Today we had a packed schedule with many different appointments and doctors to see.  We started out with mom's port being accessed and blood drawn for the weekly lab work. The results came back a little less than positive.  We were told mom's kidney functions are getting worse and her Sodium and Magnesium levels were very low.  After the nurse checked mom's blood pressure and the reading was 81/50 there was some serious concern.  It was obvious that mom was very dehydrated and was not drinking the amount of fluids that was ordered by her team of doctors.  Dr. McKnight's nurse requested that we call Dr. Scott, the family doctor to discuss her blood pressure and the high blood pressure medications she has been taking for many years.  Being that mom is no longer a smoker, her high blood pressure medicine would need to be altered.

The Beam of Hope

"This beam was signed by people who have been touched by cancer, just like you.  They are patients, survivors and family members who made the journey you are now making and signed this beam as proff that hope is real.  We will accompany you on this journey and will share your passion, acknowledge your courage and celebrate your tenacity of spirit

Cancer Treatment Centers of America is your home for healing and hope."

Mom was originally prescribed a form of chemotherapy known as Cisplatinum and due to the effects on her hearing from her first chemo treatment Dr. McKnight and his team are planning to change it. Being that mom is having one of the side effects from the Cisplatinum, which is permanent hearing loss including complete deafness Dr. McKnight doesn't want to risk it.

Next on the schedule today was Radiation prep and treatment.  We only had minutes to get to that appointment.  Mom took 100 percent raw natural Wildflower Honey that she bought from Barley and Vine. She is supposed to take one tablespoon of honey and swish 15 minutes prior to the radiation treatment and 15 minutes following the treatment.  The honey soothes her throat and mouth from the radiation treatments.

The view of the bottom floor from Quality of Life

Next it was up to Quality of Life form mom to have Infusion for two and half hours due to dehydration.  She was getting extremely restless and impatient so it was nice to get done and go home.

The Charm of the Day; Sky Blue.